Another tres bon jour a la office - we now officially know what to do with me and my body! First and foremost, I will get to go home on Friday. So not too long now at all. And the steroid issue will be managed by me having fortnightly then monthly injections of a steroid that kind of releases slowly so it lasts till your next dose a few weeks later. Or something... I'm not sure exactly what it is but I start it tomorrow or friday so after tomorrow, NO MORE HYDROCORTISONE!!
You should have seen the grin spreading on my face... one happy customer. My Drs are Ledge -ends.
Tbh though, just in time for me to stop it, the IV HC side effects have worn off now - I'm back to what I weighed when I was admitted (kind of skinny but at least I'm not bloated lol) so the fluid retention must have gone, and I don't feel too steroidy really, I don't think I can blame my mood swings on them anymore coz I am naturally quite grumpy lol.
With the whole oxygen issue, basically tomorrow I'm going to redo my sats for a running sesh and see if I'm needing less than 10l now to maintain sats over 90. Which could well be possible as I've been way less lactic-acidy today then I was before...
So we'll reassess just what o2 I need to do my proper workouts, to know where we're at, but whatever it is, it doesn't change whether I get out friday, because Dr doesn't want me to have the portably cyclinders as they're heavy and would kind of make me more worn out if I had to backpack them whilst running outside.
Soooo... the only real way I can get around this is to get a treadmill at home. So I can do my runs whilst using the oxygen concentrator that I've had at home since December.
It's not ideal as I would love to be able to get outside for the runs, and not have any break between getting home and carrying on, but I guess it would be a mare carrying the cyclinders due to the amount I need to get through one 30 minute session.
And we have a large tank that we can take over to the gym, so I guess I'll have to grin and bear it till I sort out a treadmill.
I may also have to get a few of those funky exercise DVDs to do in the living room using the o2 till then, coz that's kind of vigorous if you do it properly... lol bums and tums here I comes.
The exercise went pretty well again today - I did my first session exactly the same as yesterday, and it actually felt easier already! So 2.2 km down by 8.30am, then a little walk to the cafe and back when Mom was here, then later on I did 3.4 km in about 31 minutes!
I did 8 minutes running in total, in one lot of 4 minutes and 2 lots of 2. I got a slight stitch probably from the tea I'd been drinking earlier so it wasn't totally comfortable, but it would have been fine otherwise. And I was cautious of overdoing it and going for loads again when I know my legs get very achey and tired if I overdo it. But it was good coz I upped the incline and pace of the walk during the walking part, to increase the workout without completely overdoing it.
For the first time, I actually recovered really well after the session - I didn't feel heavy headed and sleepy and just stayed on 3 litres o2 for my stretches then came right off, and the legs haven't been at all achey!
Flipping gooood really. Nervous about how long I'll have to wait before being able to do it as well as I have been here, when I get home, but it will get sorted!
I'm really hoping that I can maintain sats of 91-92ish on 6-8 litres tomorrow, but we'll see and I'll not let myself get too worried if I still have to have 10 for now because at least that amount actually allows me to do loads more now. I got the physio to check what my sats were doing when I go up the stairs (big evil three flights stupidly in a specialist chest hospital making us all feel unfit grrrr) and they went to 82, so not great, however... they would have been in the 60s a few months ago and I also walked up them kind of slowly but without stopping at all. And they went back up to 93 within about 2 minutes of stopping at the top and doing some serious breathing! Lol. At least I don't have 3 flights to go up at home...
xxx
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